Moving to the Floor

Kaleb is almost through weaning off his sedation medications and he will be moving to "the floor" (the step-down unit/ACCU) today.

We had a full weekend filled with LOTS of fun. Though we are missing Kaleb hardcore, we're seeking to treasure these last days being more free to go on adventures with Zion and River.

Lungs

Kaleb’s lungs have improved significantly since we brought him in two weeks ago. The pulmonologists are actively seeking to get Kaleb on the lowest home dose of oxygen they can. Right now, he is only on .25 liters of oxygen during the day (which they can't seem to wean him off of) and at night when he's on CPAP (level of 6), he is on room air oxygen, just with the pressured flow to help keep his airway open. He’s also handling being on CPAP at night very well, which is a gift! When meeting with his pulmonologists they mentioned how glad they were that he doesn’t seem to have any form of interstitial lung disease, which is much harder to treat. Would you join us in thanking God for protecting Kaleb and pray for him to grow quickly and be able to wean off of daytime oxygen, since he's so close? This would significantly affect our day to day life.

After having a few fussy days, the nurse yesterday put him in a stroller and walked him around the CICU. Apparently all he had really wanted was to see people, because last night was his best and happiest night yet!

Heart

We talked with Kaleb’s cardiologist yesterday to find out where his heart is at big picture. He told us Kaleb’s heart is at a comfortable baseline for him. It’s not a healthy heart, but it is doing its job. They are going to take him off of Amiodarone, which is a pretty intense drug that was helping with his abnormal heart rhythms. And they have added in a new drug to optimize the conditions of his heart so that it can grow and work on remodeling itself. We were encouraged by this!

Ministry

We are loving being a part of Trinity Cambridge Church! Opportunities to fellowship, disciple, and receive care abound. After church on Sunday we had our friend from Turkey over (who was recently baptized and is pursuing membership in our church!). She grew up as a nominal Muslim and is a newer believer, very thoughtful, and very sweet. Talking with her about the Bible is like pouring water on a sponge—she is interested in everything! It is a complete joy to walk with her as she reads Scripture and learns what it means to be a follower of Jesus.

Todd’s work with the church and GCC is ever expanding. He is helping the church with various administrative leadership roles. This week he will accompany Mack and Leeann in Atlanta, GA for the ACME gathering for missions to share about GCC. We are currently working on finishing the last of 52 booklets which outline a multitude of issues related to these topics:

  • Missions Foundations

  • The Role of Sending Churches and Agencies

  • Missionary Basics

  • Missionary Care

  • Modern Missions

  • Strategic Opportunities

  • Planting Churches on the Field

All of this material will be published into a book in the near future and we are very excited about it!

Please Pray

  • For Kaleb to grow big and strong, for his lungs to strengthen so they put less stress on his heart, and so that he is able to wean off oxygen

  • For Oyku, our turkish friend, to grow in her knowledge and love of the Savior and that God would protect her from the schemes of the devil.

  • For wisdom for us in parenting and in how to use our time well–because the time is short!

  • For an ever-deepening love for and fellowship with our Savior.

I wrote this poem recently thinking about the beauty of spring and the brokenness of this world.

As I make my way to the place

That holds my heart, my baby

Once again intubated

His silent cries call me back to him.

I make my way

through a waterfall of blossoms

through the tunnel of towering sycamores

ancient in their glory

along the majestic, sparkling river

sailboats skating the surface—

What kind of God thinks this up?

Trees bringing forth their leaves

with an explosion of white lace

and blushing gowns of tulips.

They could be beautiful but static.

Instead they surge with life again

and again

and again

Waves crashing on my consciousness -

Grace, grace, grace

Joy, joy, joy

And yet–my boy.

My baby boy who's spent more time

inside a hospital than in his home.

He labors to breathe and beat

And still he does so with joy.

How could such stunning beauty

And such visceral pain

Dance together so closely?

Creation testifies

to the goodness of God.

This is my Father's world

in sickness and health

brokenness and beauty

sorrow and joy.

This is my Father's world

and I will join my voice.

I will not silence the chorus of praise

that sings me along the way,

Along the way to see my precious boy

Masterfully crafted, painfully broken

Wonderfully purposed, lovingly carried

By my Father.

04-25-25